About three years ago, I started having some really strange problems with my feet…swelling, redness, and pain so intense that the breeze from the ceiling fan was excruciating. Multiple trips to my local doctor and test results did not reveal anything abnormal. My symptoms would go away, come back and then change to the other foot. The pain and stiffness began to move to my elbows and shoulders. I can remember many times having to hold up my elbow to brush my teeth. It was a very strange time in my life. Teva flip flops with the mush sole became my best friend and my only footwear. I had a black pair for casual attire and a pink pair for special occasions. I am glad that I didn’t have many special occasions that summer.
Today was one of those days…just an all around gloomy yuck day. I like to think of myself as an optimist and spend a lot of time trying to encourage and cheer up those around me. However, I do have my own little moments…moments in which vanity can completely sour my day. Today, I had the bright idea of taking a photo of myself to update my Facebook profile. I have a new camera with a timer and thought….well, I should do it. After all, I’m always the one behind the camera taking the pictures and am pretty much absent from all of my family’s pictures, for the last 25 years or so. So, here we go…for posterity’s sake.
Anyway, I start out by going to my cosmetic drawer and fixing up a tad. I’ve never been one that wears much makeup, but I do know and appreciate the value of a little here and there. I have the same attitude about my hair. I know that I have to pay for highlights, otherwise I look really tired. In my 20’s & 30’s, I used to do the whole hot roller, teasing, hairspray thing. Now, I tend to do the roller brush, little bit of teasing, and spritz of hairspray thing. After the quick primping session, I take my dog and we go outside for some pics. Okay, I figured out how to use the timer…pretty easy. I came in and uploaded the pics to my computer. Somewhere after uploading and watching the photos appear on the screen, I felt my entire body sink into a lifeless little puddle of self-loathing and disbelief. What I saw in those photos was not what I was expecting.
I don’t know where I went, but I was nowhere to be found in those pictures. So, I decided….well, they were taken in direct sunlight. Yes, that was it! Nobody should take a picture in direct sunlight. So, off to the backyard again. This time, I would take some pictures in the softer, more friendly shade. After uploading… I must need to try moonlight without a flash.
I told my husband about my experience when he came home from work. He’s a smart man, so he knew what he must say….oh, honey…you’re still pretty….you’re just being silly. He did gently add that my change to bare mineral makeup about a year ago, might not have been the best choice. Now he tells me! Anyway, at least someone told me. So, in an attempt to practice what I preach…I decided that I should do something instead of just whine….so, I did an internet search and looked up my local Mary Kay lady. Those pink Cadillac ladies always look good. Maybe she can help a girl out.
Well, today was the one day that most women dread the other 364 days of the year…their yearly visit to the gynecologist. I say most, because there are always exceptions. I’ve been around long enough to know that some probably will say something like…”no, I actually enjoy the experience of making sure that my body is healthy”. Whatever. An added bonus at today’s visit was the mammogram. I wasn’t aware that it was scheduled today as a part of this annual event. The good news was that they used a new digital mammography machine. The radiology technician was so excited to share that I was one of the first to get to take advantage of this new technology. My assessment: Big deal. It still uses the same principle of flattening your boobs out like pancakes. I actually looked down at my flattened size 34B in between those two sheets of Plexiglas with sadness….poor little thing. Surely, somebody somewhere can come up with a better way to do this. The tech and I discussed why someone hasn’t come up with a scrotum exam using this type of concept…I’ll bet that would accelerate the invention process! In the mean time, we’ll be waiting! I will say, for those that have not had a mammogram yet, it’s really not that bad…just uncomfortable. It is so worth a little bit of discomfort to know that you are doing everything in your power to protect your breast health. Do it!
The other good news today was that I didn’t have to do the other exam because I started my period yesterday….great… so it’s now rescheduled for next week. I didn’t cancel because I wanted to talk to my gyno about “perimenopause”. I’m 46 and have started having some weird symptoms……heavy periods, periods close together….missed periods, etc. So, the nurse discussed with the gyno and decided that I should have blood work done to check my hormone levels, then we could have a long talk at my visit next week.
I told the nurse that I had been researching bioidentical hormones with the ulterior motive of finding out the direction that next week’s visit would go. I found out in about ten seconds that my gyno is not a fan of bioidentical hormones. The nurse told me that they have seen many women that have really gotten into trouble by using bioidentical hormones that are compounded at pharmacies. She said that typically what happens is that they are given far too much of the hormone which starts another set of problems for the patient. I then asked if they would be testing my progesterone levels and was told “no”. She said that they only do the FSH and thyroid tests. She said that they do not do the “spit on a swab” tests, as she called it to check progesterone levels. She was referring to “saliva” testing for hormone levels. There are independent labs out the wazoo that are now doing saliva tests through the mail…..gotta make you wonder how reliable this method can be.
Bioidentical hormones have been widely discussed in the past year on Dr. Phil and many others. Suzanne Somers has written a book about biodenticals that has been met with both lofty praise and loads of criticism. Her approach to taking care of her own health is a little unconventional, but hey….it seems to work for her and she seems healthy and happy. Isn’t this the goal for all of us?
I enjoyed this article written in part by Dr. Erika Schwartz and published in the New York Times about hormone replacement therapy.
I suppose we will see after next week’s visit what my blood work reveals and if I am in perimenopause or the beginning stages of menopause. It is also a possibility that my symptoms are due largely due to side effects of my RA medication. Who knows? What I do know is that I will listen to my gynecologist’s opinion about hormone replacement therapy. I will then make a decision based on her knowledge and my research. After all, I’m not a doctor, but I am a thinker. I’ve also owned my body for quite some time.
It was a Saturday. My husband’s family had gathered at my in-laws to do some painting on their newest “fixer upper”. We were all winding down and decided that it was time to stop and eat dinner together at our favorite Mexican food restaurant. The guys went outside and picked up a basketball and began to play for a little while. After a few minutes, we all loaded up and went to the restaurant. After ordering, my sweaty husband got my attention and asked me to bring his home because he wasn’t feeling well. So, I stayed with the rest of the family and brought his meal home. I found him in bed complaining of pain in his diaphragm. He said that he thought he must be getting a stomach virus. He was only 43, and honestly a heart attack never entered my mind. He is a tall guy with an athletic build, not overweight, low cholesterol, non-smoker…..no real risk factors except for one…stress. His job was stressful and he is a major people pleaser.
He happens to be one of those leave me alone….I’m sickk kind of people. I, on the other hand, like to be the center of attention when I’m sick. So, it’s hard for me not to constantly check in on my patient and want to help. I did my best to let him rest, but it wasn’t easy. We didn’t go to church the next morning and he seemed to be feeling better. On Monday morning, he got up and went to work…he had probably a million sick days built up…but those must be for sissies…not for big strapping healthy men.
Later that morning, his secretary called me at my office. She told me that she was really worried about my husband and said that “his color just doesn’t look right”. I immediately called the local rural clinic and made him an appointment. I met him out there as they were giving him the results of the blood work. Fortunately for us, the physician that saw my husband that day previously worked in a trauma unit at a large hospital and knew immediately what had happened. My husband’s blood enzyme level test was elevated, indicating that he had a heart attack. Instead of the doctor telling him those words, he just said that the levels were elevated and that he needed to see a cardiologist. He told him that he had made him an appointment for the next day. So, I dealt with the knowledge that my husband could easily have died on Saturday, or Sunday, or even today. I also dealt with a very long evening and night. He wasn’t very concerned because he didn’t realize what had happened and yes…he went ahead and attended a board meeting that evening. I spent a sleepless night just listening to him breathe.
The next morning when he was in the shower, I discreetly packed an overnight bag for him. I knew that they would keep him. I say discreetly, because I wanted him to stay calm. I tend to believe that ignorance is bliss. Not that he’s ignorant, of course…..just a man in total and complete denial.
We got to the cardiologist’s office with lab work in hand. The cardiologist took one look at it and said, “well, it looks like you had a heart attack”. My husband’s response was typical, “really?” he said. The doctor said that he would need to check in at the hospital for a heart catheterization. So, we walked out of the office and drove over to the hospital. I grabbed the overnight bag and just looked at him and said “I’m sorry….I knew we would be staying.”
A friend from high school that was now the director of cardiology at the cardiologist’s office was there to keep me company during the heart catheterization procedure. It really was a blessing because he told me what to expect. I do better when I know what is happening. What I wasn’t prepared for was the news that my husband needed open heart surgery….two by-passes. I was terrified. I had seen the procedure on ER….I knew what was involved. Thinking about our two children, ages 11 and 16 made me even more emotional. But, after viewing the films that revealed a complete blockage on one artery, and an 80% blockage on the artery that is called “the widow-maker“…I knew that it was absolutely necessary.
The surgery didn’t happen immediately. Weird blood work delayed the surgery until Thursday morning. In the meantime, our hospital room was a revolving door of well meaning friends, relatives, and my husband’s employees. This man is not only loved by me, but just about anyone that knows him. He’s that kind of guy. The constant stream of visitors was great, but exhausting. I made a mental note to remember for the future…keep your hospital visits short….say hello, I’m thinking about you, I’ll be praying, and let me know if I can help…then leave.
The morning of the surgery finally arrived. He acted as though he was going in for a root canal. So, I kissed him and watched as they rolled the other half of my heart down to the operating room. The waiting room, again, was filled and overflowing with our family and friends. After about four hours, I started getting really anxious. At the fifth hour, I had to get up and away from everybody. I needed a quiet place. I found a little hideaway down the hall, but within view of the hallway that the Dr. would come down after the surgery. It was during this time that I felt the most complete and empty feeling that I have ever experienced. I just sat down and cried and prayed. I was never told that they had any trouble getting his heart beating again…but I felt so alone. I have always wondered…
I don’t know how much time passed, but a dear friend came around the corner and told me that the doctor was coming down the hall. Like a row of dominoes, I followed in behind the doctor, followed by our family and friends as we filed into the “family” room off of the waiting room. It was the longest twenty steps I had ever taken because the idea that he was taking us into the “family” room was terrifying. The doctor stopped and turned around….I stopped almost bumping into him followed by a chain reaction. We must have looked like a bunch of bozos. But, the news was good. He had made it through the surgery without complications. Thank you Lord….
Thankfully, my friend had prepared me for what I would see when I got to see my husband in ICU. Tubes, machines, more tubes, wires, and masks would be everywhere. Before he went in for surgery, we came up with a “secret” message between the two of us. We knew that he would be on a ventilator for a while and wouldn’t be able to talk. I told him to raise his eyebrow if he could hear me and was okay. When I went in to see him for the first time, I was able to look past all of the tubes, machines, more tubes, wires, and masks and look into his eyes. My first question was, “remember our secret?” Not only did he raise one eyebrow, he raised both…several times…separately….together…over and over again. Thank you Lord for my husband, the comedian. Thank you Lord.
ICU is not a particularly great place for the family, but I liked the idea that a nurse was sitting five feet from his bed 24/7. I felt really important once when the respiratory therapist told me that he was trying to get him off the ventilator, but that my husband was having trouble. I watched for a little while and realized that he was doing the opposite of what he was told…typical man. I told him, honey..breathe in when I say breathe in…then breathe out..and the rest is history. I may have a future as a respiratory therapist.
The next day, he was released from ICU and put into a regular room…after first being placed into a shared room with a man that was throwing up. I’m normally a very polite and courteous woman, but when someone isn’t taking care of my family…I can get ugly. The doctor had requested a private room and the nursing staff was trying to tell me that there wasn’t one available. I had a “conversation” with the head nurse and I’m certain that I became the witch with a b….in the last room down the hall.
The next four days were pretty uneventful. Uneventful is good when you are a heart patient. I hadn’t left the hospital since he was admitted, so was pretty exhausted. I started having panic attacks that give you the same symptoms as a heart attack. But, I felt pretty confident that I wouldn’t also be having a heart attack. I mean, really..what are the odds of that? So I just got through it. I knew if I said anything to anybody that they might make me leave. I couldn’t leave…after all, I had to give him his sponge baths. I had to protect him from my mother trying to do it. She actually tried to convince him that she had given plenty of sponge baths and had seen just about everything. He just responded by raising his eyebrow and giving me that special “look”. Enough said.
It’s been nine years now since the surgery and he is doing well. We did change cardiologists around year seven because the first one wouldn’t ever do any testing other than blood work. I kind of insisted that he get a second opinion. I think the good Lord just lets us know when something isn’t right. Sure enough, he failed the stress test and the echo-cardiogram. So, the cardiologist recommended another heart catheterization. He said that it wasn’t absolutely necessary to do it immediately since he wasn’t having any symptoms, but that he could do it now…or later. So, we chose now. This time, the blockage was opened up by a stent and he was home the next day. Thank you Lord.
There have been many good things that have come from his experience. Droves of men have gone for checkups as a result of his heart attack and surgery…simply because he didn’t look like the type that was at risk. He is always advising men to go and get those strange symptoms checked out. If I had it all to do over again, I would have made sure that he had seen a cardiologist before his 40th birthday. As strange as it may sound, older men are more likely to survive heart attacks than younger men because their arteries have formed alternate pathways over time. Younger men don’t have these alternate pathways, so when they have a blockage…it can be catastrophic. So, please pay attention to the warning signs of a heart attack. And, make your husband an appointment to see a cardiologist even before he has any symptoms. Ask around and be sure to find one that focuses on heart disease prevention instead of just treatment and medication. Follow your instincts and find a physician you trust. Some people tend to be intimidated by doctors and think that if they’re a doctor, they can be trusted to care for you and your family. Just remember what somebody told me one time…”just because they’re a doctor doesn’t mean that they graduated at the top of their class”.
Thank you Lord…for good doctors, nurses, and surgeons that are dedicated and devoted to the profession of medicine and healing.
Two generations of my family were my lunch dates today…one cousin, one second cousin, my aunt, and my mom. As is typical with many family gatherings, the entire hour and a half was spent talking and interrupting each other. We spent the first ten minutes just catching up on our lives….then the conversation shifted to a very dark place…politics. After venting for about fifteen minutes, we were back to chatting and laughing at each others comments and their lack of technological savvy. I would be the exception, of course, because I’m all about technology; whether it be Facebook, Twitter, my new Iphone, web pages, Ebay, or now blogging. I really am a wanna be computer nerd.
My aunt and I debated whether it was socially “proper” to invite someone to an event using Evite.com, email, or text. She was adamant that receiving an “evite” just wasn’t for her. For me…the easier the better…as long as it’s done well and is aesthetically pleasing, of course. Then, I explained to this 40+ crowd how much fun that I was having with Facebook until I started to notice their eyes drifting to the dessert menu. So, we moved from technology back to politics and ended with the realization that most Americans just aren’t as smart as we. We surely could solve all of the world’s problems if someone would just ask. We parted ways by taking funny pictures of each other on our cell phones…..back to technology….aaaahhh. Yes, laughter is good for all of
My trip to the gym today was clouded by a skyline of wonderful brown dust. Nevertheless, it’s a good day to be alive. My trek to the gym started as a result partly to the book, “What’s Age Got to Do With It” by Robin McGraw….you know, Dr. Phil’s wife. She talks in the book about how exercise is just a part of her life and how if you want to succeed, you have to schedule the gym as if it were an appointment. She’s right. As simple as it sounds, if you don’t treat it as a regular appointment you will find every excuse in the world not to go. And, you know what I mean…..really good excuses like “I need to get my haircut and this was the only time she could do it”…that kind of thing. So, my family and friends know that on Monday, Wednesday, and Friday…I have an appointment from 12pm to 1pm with the gym equipment that can only be canceled by a dire emergency …or a flare.
Ahh…..Dr. Oz. You know…he’s the brilliant cardio-thoracic surgeon that appears on Oprah and talks about poop. He was the first person that ever told us that our poop should be shaped as a C. Who knew? His new show is in it’s first season and he is featured as an expert with Dr. Michael Roizen on the website RealAge.com. If you’ve never gone to the Realage.com site and completed the RealAge test, I challenge you to do it now. It may be the wake up call you need to get your wheels turning on the road to good health. When I first took the test, my RealAge appeared about three years older than I am…information that quite frankly…irritated me. I don’t mind being 46, but 49…not acceptable. So, I did what most of us do and started figuring out what I had to do to manipulate the test to shave off those years. I quickly found out that there wasn’t a quick fix and that my lack of exercise was making my RealAge older. So, the combination of this reality and Robin McGraw’s inspiration…I committed myself to exercising three days a week. My RealAge returned and is now two years lower than my actual age…gotta love that.
The idea about doing a blog came from my daughter…my beautiful 24 year old daughter. On February 12, she called me to tell me about a really strange rash on her legs, a red area on her arm that looked like a “hickey”, black dots in her mouth, and a really heavy period. I did what I always do when I’m not sure about something, and got on the internet. I quickly discovered that she needed to get to the doctor. The rash on her arm and legs was called petechiae. Blood was collecting close to the surface of the skin. My online search revealed that it could be caused by a few things, but the one that scared me the most was leukemia. I called her back and told her that I wanted her to go to her physician. She was busy at work and didn’t think she could leave early that day. I went ahead and called her physician and got her in at 3:00 that afternoon. We talked back and forth a few times and she decided that it could wait until the next day. Thankfully, a co-worker encouraged her to keep the appointment. She saw the doctor and he ordered blood work.
The next morning while at work, the doctor’s office called her and told her that she needed to get to the hospital. Her blood platelet count was at 2,000. Normal count begins at 150,000.
Our cell phone service is horrible from her office, so she couldn’t get in touch with me, but was able to get her Dad. He called me to tell me that she was going to the hospital. There was only one seat available on the next flight, so we decided that I would take the first one. He would follow in a few hours.
I could continue to tell this story, but she tells it so much better. I encouraged her to do a blog in the hopes that it would help her and possibly help someone else newly diagnosed with ITP (Ideopathic Thrombocytopenic Purpura) . Read about it at: http://www.hemadrama.wordpress.com/
During this eight month long process, we both learned that the best information and comfort comes from other people that share your experience. So, I decided that I could share my experience with RA, hormone issues, and my husband’s experience with heart disease. If it helps one person..it’s good.
Welcome to my first posting. I’m not exactly sure what I’m doing, so prepare to be amused as I fumble through the world of blogging.
My idea for this came from boredom. I have some extra time on my hands now that I’m an empty nester, so I decided that I would try my hand at writing something. Hmmm….what could I write about? I think of myself as having a very normal life, an awesome husband, two great kids, and an adorable little dog…..not terribly exciting topics to anyone but me.
What my husband and I don’t have…is perfect health. My husband had a heart attack at 43 followed by double by-pass surgery. I was diagnosed with rheumatoid arthritis at 44. So, our forties have not been, well …”fabulous”. But, the great part is that both of us are still here! It is my goal for it to stay that way. We want to grow old together and enjoy our life along the way. For me, having RA is just a speed bump, not a road block. I will not always blog just about RA…because my life is so much more than that. So, come along with me as I’m living life with RA.





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